Funny guy Bob Deyan is one of the most beloved audiobook producers in the US. He and his wife Debra founded Deyan Studios building it from the ground up to be one of the top producing production studios in Los Angeles.
Growing their team of professionals the company has worked with over 60 recording engineers, over 120 sound editors, and nearly 1500 voice actors since the company’s inception. Last year the company recorded one years’ worth of audiobooks in two months time. To say this is a hard working couple is an understatement.
At the beginning of 2013, at the height their success, Deyan was diagnosed with ALS. Commonly known as Lou Gehrig’s disease, ALS (amyotrophic lateral sclerosis) is a terminal condition that affects approximately 1 or 2 out of every 100,000 people each year and is one of the most common neuromuscular diseases worldwide. People of all races and ethnic backgrounds are affected in all regions across the globe. ALS most commonly strikes people between 40 and 60 years of age, but younger and older people can also develop the disease.
ALS is debilitating. As weakness and atrophy progresses throughout the body the condition rapidly causes weakness, muscle atrophy and fasciculations, muscle spasticity, difficulty speaking, difficulty swallowing, and difficulty breathing. The yearly costs to manage the condition are estimated to be at least $200,000 in the US.
There is currently no cure. There is little known about the disease or what causes the onset but there is hope. According to Medical News Today, “A group of investigators from the University of British Columbia and the Vancouver Coastal Health Research Institute have discovered a crucial link between prions and the neurodegenerative disease ALS.” There are a number of other clinical trials underway around the world as well. A comprehensive list of all ALS trials in the US is available through ClinicalTrials.gov.
With a fierce determination Deyan is using his voice to help raise awareness about ALS and has set out on a mission to further research and development to fight this disease. His goal is to raise one billion dollars for a cure.
To learn more about Deyan’s story and his mission to end ALS watch the documentary-short that follows a humorous and moving journey through his childhood, meeting his wife Debra, being honoured with the Lifetime Achievement Award at the 2013 Audies, and his diagnosis of ALS.
Deyan’s family and friends have set up a short-term fundraiser to help with medical expenses. If you are able to donate, visit: www.YouCaring.com/bobsalsfight